Wednesday, September 12, 2012

Just Another Day

I found this video from Seattle Children's.  It really puts into words the feelings that a parent of a child with autism deals with on a regular basis.
Please watch.

http://www.youtube.com/watch?v=ll3RBkrjKHI&feature=player_embedded

Tuesday, September 4, 2012

Standing Up

Politics.  One of the topics you never discuss without someone leaving the conversation hurt or angry.  However, I am writing this, not just because it's an election year, but because it's time to advocate for Autism.  We are blessed that we live in a state that has put some stepping stones in place for peoples with autism.  But what about the other 49 states? What are our politicians going to do about this rising epidemic? Do they have a plan?  In a time when the economy, jobs, foreign affairs, national debt and other (sometimes childish) topics take main stage in the debates, I feel that it might also be time to address the candidates about their plans for autism.  The following article tells the story of a mom, who's 10 year-old son has autism. He got to meet President Obama, and share his message one-on-one.
Ps. Kleenex is needed.

http://www.ageofautism.com/2012/09/advocating-in-america-for-autism-how-we-met-president-obama.html


Monday, September 3, 2012

Summertime

I can't believe that it's Labor Day and summer is almost over.  Miller, Terry and I have had such a lovely 2 months.
We started out the summer in June with a trip to Bow, WA for a little family vacation with my parents.  Then the 4TH of July week we were able to have an outing to Deception Pass State Park to frolic by the ocean and Cranberry Lake.
Miller then attended a short summer school session of 4 weeks to make sure he didn't forget any of his lessons.
Then we rounded out the summer with another mini vacation with my best friend, Marie to Seattle where we rode "The Ducks" went to the Pike Place Market and rode a little train around The Country Village.
Whew, I'm tired, but Miller is not! I'm looking forward to next week when he starts school again.  He does really well with a routine and structured learning.
Hope everyone out in internet land a had a great summer as well!









Wednesday, August 22, 2012

Rules For Boys

I may not be able to teach all these wonderful things to Miller, but I'm sure going to try. 

25 Rules for Mothers of Boys
By Tabitha Studer Via Gimundo.com


1. Teach him the words for how he feels.
Your son will scream out of frustration and hide out of embarrassment.  He’ll cry from fear and bite out of excitement.  Let his body move by the emotion, but also explain to him what the emotion is and the appropriate response to that emotion for future reference.  Point out other people who are feeling the same thing and compare how they are showing that emotion.  Talk him through your emotions so that someday when he is grown, he will know the difference between angry and embarrassed; between disappointment and grief.
2. Be a cheerleader for his life
There is no doubt that you are the loudest person in the stands at his t-ball games.  There is no doubt that he will tell you to “stop, mom” when you sing along to his garage band’s lyrics.  There is no doubt that he will get red-faced when you show his prom date his pictures from boy scouts.  There is no doubt that he is not telling his prom date about your blog where you’ve been bragging about his life from his first time on the potty to the citizenship award he won in ninth grade.  He will tell you to stop.  He will say he’s embarrassed.  But he will know that there is at least one person that is always rooting for him.
3. Teach him how to do laundry
..and load the dishwasher, and iron a shirt.  He may not always choose to do it.  He may not ever have to do it.  But someday his wife will thank you.
4. Read to him and read with him.
Emilie Buchwald said, “Children become readers on the laps of their parents.”  Offer your son the opportunity to learn new things, believe in pretend places, and imagine bigger possibilities through books.  Let him see you reading…reading the paper, reading novels, reading magazine articles.  Help him understand that writing words down is a way to be present forever.  Writers are the transcribers of history and memories.  They keep a record of how we lived at that time; what we thought was interesting; how we spoke to each other; what was important.  And Readers help preserve and pass along those memories.
5. Encourage him to dance.
Dance, rhythm, and music are cultural universals.  No matter where you go, no matter who you meet – they have some form of the three.  It doesn’t have to be good.  Just encourage your son that when he feels it, it’s perfectly fine to go ahead and bust a move.

6. Make sure he has examples of good men who are powerful because of their brains, their determination, and their integrity.

The examples of men with big muscles and a uniform (like Batman and LaMarr Woodley) will surround your son from birth.  But make sure he also knows about men who kick a$s because of their brains (Albert Einstein), and their pen (Mark Twain), and their words (Dr. Martin Luther King Jr.), and their determination (Team Hoyt), and their ideas (The Wright Brothers), and their integrity (Officer Frank Shankwitz), and fearlessness (Neil Armstrong), and their ability to keep their mouths closed when everyone else is screaming (Jackie Robinson).

7. Make sure he has examples of women who are beautiful because of their brains, their determination, and their integrity.

The examples of traditionally beautiful women (like Daphne Blake, Princess Jasmine, and Britney Spears) will surround your son from birth.  But make sure he knows about women who are beautiful from the inside out because of their brains (Madame Marie Curie), and their pen (Harper Lee), and their words (Eleanor Roosevelt), and their determination (Anne Sullivan), and their ideas (Oprah Winfrey), and their integrity (Miep Gies), and fearlessness (Ameila Earhart), and their ability to open their mouths and take a stand when everyone else is silent (Aung San Suu Kyi).

8. Be an example of a beautiful woman with brains, determination, and integrity.

You already are all of those things.  If you ever fear that you are somehow incapable of doing anything - remember this:  If you have done any of the following:  a) grew life b) impossibly and inconceivably got it out of your body c) taken care of a newborn d) made a pain go away with a kiss e) taught someone to read f) taught a toddler to eat with a utensil g) cleaned up diarrhea without gagging h) loved a child enough to be willing to give your life for them (regardless if they are your own) or i) found a way to be strong when that child is suffering…you are a superhero.  do not doubt yourself for one second.  Seriously.

9. Teach him to have manners

because its nice.  and it will make the world a little better of a place.
10. Give him something to believe in
Because someday he will be afraid, or nervous, or heartbroken, or lost, or just need you, and you won’t be able to be there.  Give him something to turn to when it feels like he is alone, so that he knows that he will never be alone; never, never, never.

11. Teach him that there are times when you need to be gentle

like with babies, and flowers, and animals, and other people’s feelings.
12. Let him ruin his clothes
Resolve to be cool about dirty and ruined clothes.  You’ll be fighting a losing battle if you get upset every time he ruins another piece of clothing. Don’t waste your energy being angry about something inevitable.  Boys tend to learn by destroying, jumping, spilling, falling, and making impossible messes.  Dirty, ruined clothes are just par for the course.
13. Learn how to throw a football
or how to use a hockey stick, or read music, or draw panda bears (or in my case alpacas), or the names of different train engines, or learn to speak Elvish, or recognize the difference between Gryffindor and Slytherin, or the lyrics to his favorite song.  Be in his life, not as an observer but as an active participant.
14. Go outside with him
turn off the television, unplug the video games, put your cellphone on the charger, even put your camera away.  Just go outside and follow him around.  Watch his face, explore his world, and let him ask questions.  It’s like magic.
15. Let him lose
Losing sucks.  Everybody isn’t always a winner.  Even if you want to say, “You’re a winner because you tried,” don’t.  He doesn’t feel like a winner, he feels sad and crappy and disappointed.  And that’s a good thing, because sometimes life also sucks, no matter how hard (as moms) we try to make it not suck for our kids.  This practice will do him good later when he loses again (and again, and again, and again, and again…..)  Instead make sure he understands that – sometimes you win – sometimes you lose.  But that doesn’t mean you ever give up.
16. Give him opportunities to help others
There is a big difference in giving someone the opportunity to help and forcing someone to help.  Giving the opportunity lights a flame in the heart and once the help is done the flame shines brighter and asks for more opportunities.  Be an example of helping others in your own actions and the way your family helps each other and helps others together.
17. Remind him that practice makes perfect.
This doesn’t just apply to performance-based activities (like sports and music) but also applies to everything in life.  You become a better writer by writing.  You become a better listener by listening.  You become better speaker by speaking.  Show your son this when he is just young enough to understand (that means from birth, folks – they are making sense of the world as soon as they arrive), practice trick-or-treating at your own front door before the real thing.  Practice how you will walk through airport security before a trip.  Practice how you order your own food from the fast food cashier.  Practice, practice, practice.
18. Answer him when he asks, “Why?”
Answer him, or search for the answer together.  Show him the places to look for the answers (like his dad, or grandparents, or his aunts/uncles, or his books, or valid internet searches).  Pose the question to him so he can begin thinking about answers himself.  Someday, when he needs to ask questions he’s too embarrassed to ask you – he’ll know where to go to find the right answers.
19. Always carry band-aids and wipes on you.
Especially the wipes.
20. Let his dad teach him how to do things
…without interrupting about how to do it the ‘right way.’  If you let his dad show and teach and discover with your son while he is growing up, some day down the road (after a short period of your son believing his dad knows nothing), he will come to the realization that his dad knows everything.  You will always be his mother, but in his grown-up man heart and mind, his dad will know the answers.  And this will be how, when your son is too busy with life to call and chat with his mom,  you will stay connected to what is happening in his life.  Because he will call his dad for answers, and his dad will secretly come and ask you.
21. Give him something to release his energy
Drums, a pen, a punching bag, wide open space, water, a dog.  Give him something to go crazy with – or he will use your stuff, and then you’ll be sorry.
22. Build him forts
Forts have the ability to make everyday normal stuff into magic.  Throw the couch cushions, a couple blankets, and some clothespins and you can transform your living room into the cave of wonders.  For the rest of his life, he’ll be grateful to know that everyday normal stuff has the potential to be magical.
23. Take him to new places
Because it will make his brain and his heart open up wider, and the ideas and questions and memories will rush in.
24. Kiss him
Any mother of sons will tell you that little boys are so loving and sweet.  They can be harsh and wild and destructive during most of the day.  But there are these moments when they are so kind and sensitive and tender.  So much so that it can cause you to look around at the inward, reserved grown men in your life and think, ‘what happens in between that made you lose that?’  Let’s try to stop the cycle by kissing them when they’re loving and kissing them even more when they’re wild.  Kissing them when they’re 2 months and kissing them when they’re 16 years old.  You’re the mom – you can go ahead and kiss him no matter how big he gets – and make sure he knows it.  p.s. (this one is just as important for dads too).
25. Be home base
You are home to him.  When he learns to walk, he will wobble a few feet away from you and then come back, then wobble away a little farther and then come back.  When he tries something new, he will look for your proud smile.  When he learns to read, he will repeat the same book to you twenty times in a row, because you’re the only one who will listen that many times.  When he plays his sport, he will search for your face in the stands.  When he is sick, he will call you.  When he really messes up, he will call you.  When he is grown and strong and tough and big and he feels like crying, he will come to you; because a man can cry in front of his mother without feeling self-conscious.  Even when he grows up and has a new woman in his life and gets a new home, you are still his mother; home base, the ever constant, like the sun.  Know that in your heart and everything else will fall into place.

Sunday, August 12, 2012

Mariah's 30TH Birthday!!!

To all my dear friends and family, 
My 30TH (gulp) birthday is coming up in a few weeks and I would like to ask all of you for something special. Something I know will not just help change Miller's life, but the lives of countless other autistic children, teens and adults. I am raising money for Autism Speaks! This organization does so much to help families and the community, not to mention raising awareness of this quickly spreading epidemic. Miller's autism doesn't just affect me. It affects our family and friends, our co-workers and folks we don't even know. There is so much we still don't know about autism, however there is not enough research money to aid all the studies that need to be done. 
Did you know ... 
Autism now affects 1 in 88 children and 1 in 54 boys 
Autism prevalence figures are growing 
More children will be diagnosed with autism this year than with AIDS, diabetes & cancer combined 
Autism is the fastest-growing serious developmental disability in the U.S. 
Autism costs the nation $137 billion per year 
Autism receives less than 5% of the research funding of many less prevalent childhood diseases 
Boys are four times more likely than girls to have autism 
There is no medical detection or cure for autism.... 
Help me raise awareness for autism and help give all these amazing people the voice they deserve. Thank you,
Mariah 
TO DONATE:
 http://wishes.causes.com/wishes/477944

If you would like to learn more about Autism Speaks, visit their website: 
http://www.autismspeaks.org/



Friday, August 10, 2012

Perfection

Enough said.


Thursday, August 9, 2012

Adaptation

Many businesses, schools and even airlines are now adapting to persons with autism.  This is great for me and Miller, but it also points out that there is such a huge rise in diagnosis that we have to adapt.  

http://www.abcactionnews.com/dpp/news/health/Autism-wave-prompts-schools-businesses-to-adapt


Thursday, August 2, 2012

PETS!!

They say pets could help children with autism socialize.  I totally believe that.  Miller loves animals, and not just the kitty and puppy kind.  His favorite animal is a goat.  He gets a huge smile and loves to pet them and watch them play.  I really wish we had the space (and time) for a pet, but maybe someday Miller will have a fuzzy friend.

http://pets.webmd.com/news/20120801/pets-may-help-kids-with-autism


Tuesday, July 31, 2012

Leading By Example

I just read this article, and it really hit home for me.  Especially after dealing with a few very difficult and frustrating weeks.  Read, enjoy and lead by example.

http://www.ocregister.com/articles/example-366108-something-autism.html


Monday, July 23, 2012

Error, ERROR!!!!

It's 3am and I'm up.  This is not unusual, except tonight I had gone to bed at a decent hour in expectations of sleeping until 6am when Miller would wake up with the sun demanding food and some TV.
However, I woke up to a crying, mess of a Miller.  I thought he was cold.  I gave him a warmer shirt.  Then he runs to the kitchen and signs "more" and "hungry".  Ok, easy enough, right?  WRONG!  I give him his favorite snacks and he just screams and signs more frantically.  I show him a banana, which he grabs, so I cut that up.  NOPE.  I ask if he wants milk, the king and of all beverages to him.  NO WAY! I drag a screaming, signing Miller to the bathroom and make him go.  NO! By now you can imagine I'm frustrated and a but concerned.  Miller has never acted this way before.  Especially refusing all his favorite foods.  We go back into the kitchen and Miller is freaking out worse and stomping.  I go and wake Terry up.  We are both in a showoff with an angry 4-year-old.  The worst kind of showoff to be in.  Finally in desperation, I grab the bread and Miller politely points to it.  THE CHILD JUST WANTED A SANDWICH! Oh my.  So, I'm making a better PECS strip for the kitchen to avoid future flip outs and save me some much needed sanity.

Wednesday, July 18, 2012

iPad, Therefore I am

I am SO amazingly thankful to my wonderful family for getting Miller his iPad.  It's done wonders.  Here's a great article about using the iPad for educational purposes.

http://www.autismfile.com/living-with-autism/ipad-apps-autism


Immune Irregularities Linked To Autism?

Friday, July 13, 2012

Judging

We all do it.  Outwardly, personally, secretly. Judging.  You learn to live with it, combat it and grow from it.  Until it's all about your child.  This article brings to light an issue that I have addressed before, and continue to struggle with everyday.  And it's only getting worse as Miller grows older.

"Among the problems that parents identified, dealing with judgments from other adults ranked second only to dealing with their child's behavioral problems."

http://moms.today.msnbc.msn.com/_news/2012/07/12/12707177-parents-of-autistic-kids-say-stop-judging-us?lite

Tuesday, June 19, 2012

A School Year Later

Well, Miller just had his last day of preschool for the year...at least until he starts summer school.
I am so proud of all the progress he has made.  A few of the big accomplishments include potty training, drawing vertical lines, horizontal lines, and circles, learning 10 different colors and shapes, matching and sorting, learning the first part of the alphabet (in visual-card form) using scissors independently, playing with friends and socializing, taking turns, and trying new foods!
I hope next school year goes as well as this one has gone.  We are also so fortunate to have an AMAZING, devoted school team.

Monday, June 11, 2012

Wednesday, June 6, 2012

Hidden Stress

This article really addresses the stresses that parents of autistic children face everyday.  A very interesting read.

http://triplehelixblog.com/2011/07/hidden-stress-parental-burdens-caused-by-autism/

Tuesday, May 29, 2012

Nutritional Therapy?

Many autism experts have long believed that diet plays a key role in the "cure" for autism.  I've done some research on the subject and after trying to finesse Miller into drinking organic rice milk and eat lactose-gluten free mac n' cheese, I have concluded that this is not the right move for us. I am really fortunate that Miller is such a good eater and I would like to keep that going.
However, I just found this article about a new nutritional therapy that just might be worth looking into.


http://www.foxnews.com/health/2012/05/29/nutritional-therapy-may-be-key-to-stopping-autism/

Tuesday, May 22, 2012

That Time of Year

Summer is almost upon us and Miller will be out of school soon...that means LOTS of free time that needs to be filled with activities to keep Miller, me and Terry from going completely nuts.
I have a few summer things planned, but I hope to have many more in the coming weeks.  I can't believe that it's almost Memorial Day!
In other news, Miller has been doing wonderful at school.  I am so proud of his constant progress.  He is also going to summer school again this year, but that will only last about a month, so hopefully he won't lose all the stuff he already learned!
Miller has also started to mimic our actions! We can go through the entire "Head, Shoulders, Knees and Toes" song with him following us.  His imagination has also improved.  He is creating games, and looking through books.
I am really looking forward to the coming months!

Wednesday, March 14, 2012

2 Years

2 years, 24 months, 730 days, 17,520 hours.  The time that has passed since I found out Miller has autism.  I'm still in shock.  I don't think that feeling will ever go away.  We've been through so much, climbed the highest mountains, been through the lowest valleys, and still I would not trade a single moment.  I have the most beautiful little boy.  He is my light and my life.

Monday, January 16, 2012

Someday


I found this very moving. I hope you do too.

"Someday"

From a child's perspective: I am not bad, I am autistic. I know I scream. I do have a good reason. I can not communicate like you do. I will learn how to get the point across in different ways, someday. I know I hit and pinch. I try not too. I feel bad afterward. Sometimes I get what is called 'Sensory Overload' and it makes me feel overwhelmed and afraid. I lash out when this happens because I want the environment around me to calm down. I am learning to handle it and will be able to, someday. I know I wave my arms around. Sometimes it feels like my arms are on fire or have ants crawling on them. It is called the 'Skin Crawls' and waving my arms is soothing. I am learning to get use to it and will learn to rub my arms like my occupational therapist does, someday. I know I rock, shake, fidget, poke, and hum. This is called 'Stimming'. It makes me feel calm when I stim and I do this more often when I have anxiety or I am very worried. I am learning to deal with my anxiety and will be able to, someday. I know I wear the same clothes over and over again. I am not poor or dirty. I like certain types of material and clothes without tags and hard sewn in seams. This is called being 'Sensory Tactile'. I am getting use to different types of clothing slowly and maybe I will try something different, someday. I know I am not looking directly at you. This is very difficult for me because I take pictures of things in my mind. If I am looking at you, I may not be listening because I am busy taking pictures of your face and memorizing it. Know that I can hear you and understand you. I am not lying if I am not making eye contact. People with autism very rarely lie. I have a hard time communicating and I am busy forming ways to talk, I do not have time to think of lies. I may learn to make eye contact, someday. I know I talk different or not at all. I have other ways of communicating like using pictures called Pecs, or an Ipad, or sign language. I do know what is being said to me and I am not stupid. Please do not think because I have difficulty getting my thoughts out in the same way you do, like talking, that I do not understand what is being said to me. I do. Sometimes I need time to think about it and that is called 'Processing'. I know that as I grow, I will get faster at processing and we will learn to communicate with each other, someday. I am not trying to scream, pinch, hit, avoid eye contact, stim, be poor or dirty, to annoy you. I am trying to communicate. I am not bad. I am autistic. I hope we can be friends, someday.